Part 4 of 9
Dr Lipkin has already encountered the under-funding phenomenon that ME/CFS researchers and patients are all too familiar with. Dr Lipkin’s recent application to the National Institutes of Health (NIH) for a research grant for the intended investigation of the gut microbiome of 100 ME/CFS patients and 100 rigorously matched controls did not result in funding.
The ME/CFS patient community have become used to seeing even good quality research applications rejected by government funding institutions who simply refuse to allocate a fair amount to the disease and appear dismissive of the pressing need for answers.
However, it still came as a shock to many in the patient community to learn that this world renowned scientist (who had been called on by government agencies to answer the question of the novel retrovirus XMRV in relation ME/CFS) had had this latest application declined.
This has been happening to ME/CFS research for decades. The patient community is constantly told that the reason for the lack of funding is a lack of good-quality research applications. But good researchers drop out of the field because they can’t get funding, for reasons other than the quality of their research funding applications.
The ME/CFS community knows that it cannot rely on government agencies to fund ME/CFS research, and this is the reason that so much ME/CFS research is funded by philanthropists and patients themselves.
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