A Tour of Dr Lipkin’s Microbiome study HQ

Recently a member of our (tiny!) team was in New York and had the privilege of visiting the Center of Infection and Immunity (CII) at the Mailman School of Public Health where Dr. Lipkin and his 60-strong team will conduct the study crowdfunded for by the Microbe Discovery Project. This is their report:

“I went to the CII today. They were fantastic. I only gave them two days’ notice but from 4-5:30pm, they managed to squeeze me into seeing the lab, Dr. Lipkin and also Allison Kanas. Read more ›

Posted in Uncategorized

A Mother’s Plea

From a donor and mother of a patient:

Seeing my daughter deteriorate from a bright, well-meaning teenager into what can only be described as a wreck of a human being breaks my heart.

“Speaking as a caregiver, I cannot argue about the merits of studying genetics in ME over the microbiome or the metabolome—after 14 years of neglect from the entire medical profession, I only wish for research to be done in ME and for it to be done now, period. From the view of a parent who has to worry about her child’s future as well as her own ability to take care of her daughter when she becomes too old to do so, ANY research being done is 100 times better than no research. Read more ›

Posted in Uncategorized

Dr Komaroff backs microbiome appeal

Dr Tony Komaroff. By Dashlogan  Licensed under Creative Commons Attribution-Share Alike 3.0 via Wikimedia Commons - http://commons.wikimedia.org/wiki/File:Tony_Komaroff.jpg#mediaviewer/File:Tony_Komaroff.jpg

Dr Tony Komaroff. By Dashlogan; Creative Commons Attribution-Share Alike 3.0 via Wikimedia Commons -

Great news: Anthony L Komaroff, MD, Harvard Professor of Medicine and one of the most respected researchers in field of ME/CFS, has backed Dr Ian Lipkin’s microbiome crowdfund appeal:

One of the hottest areas of biomedical research today is the linkage of our microbiome to health and disease. In my opinion, it is entirely plausible to think that the microbiome may be linked to ME/CFS.  Dr. Ian Lipkin and his team are superbly qualified to pursue this scientific hypothesis. I hope you contribute to supporting his effort.

Anthony L. Komaroff, MD

Professor of Medicine, Harvard Medical School

Read more ›

Posted in Microbiome, San Francisco conference, The Microbe Discovery Project blog series, Uncategorized

Zionsville Fellowship Church fundraiser raises more than $900

ZionvilleFellowshipThankYou

We have received the following message about a community fundraiser held at the Zionsville Fellowship Church in Indiana which raised more than $900 for Dr Ian Lipkin and his team at the Center for Infection and Immunity.  Thank you very much – what great effort!  Read more ›

Posted in Crowdfunding, Global effort, United States

Personal message from a supporter: why I support Dr Lipkin’s ME/CFS research

Here is a message from one of the member’s of our crowdfunding team:

*****

My personal thoughts about Dr Lipkin…

For me personally, I’m deeply excited by Dr Lipkin’s research plans. I can’t quite believe that we have someone of Dr Lipkin’s calibre taking such a keen interest in ME/CFS, along with such mega research plans.

The proposed gut microbiome study is complex, cutting-edge, multi-faceted and very interesting. It includes a study of cytokines, sequencing of pathogens, and a serology investigation (looking for antibodies). Even if the answer does not reside in the gut for all of us, I think the study has the potential to throw up some unexpected results that could lead ME research in an unexpected direction.

Dr Lipkin’s already got intriguing results from a soon-to-be-published cytokine study, and loads of other exciting research planned. e.g. proteomics, metabolomics, RNA sequencing, a pathogen hunt via high-throughput sequencing of blood cells. And he doesn’t seem to be intending to stop there. He’s going to follow any leads that he gets, as long as he can get funding.

For myself, it’s a no-brainer. I think that every small or large donation is a demonstration of our support for Dr Lipkin, and in my opinion, I think we should do everything in our (very limited) power to keep Dr Lipkin involved in ME research, and to show him our support, for the following reasons:

  • The gut microbiome is a fascinating area of research, but it’s just the start. Dr Lipkin’s got huge plans for CFS, if he can get the funding.
  • Dr Lipkin really is a world-class scientist. He knows what he’s doing. If he finds something, then it will be difficult for governments and health agencies to dispute it. (And he’s already found abnormalities in his cytokine research.)
  • He’s really interested in CFS. I get the feeling that he really wants to find answers, and believes that he can. He’s currently got about 6 different CFS research projects underway.
  • He’s already got some results to publish – the cytokine study.
  • Governments will find it difficult to refute or ignore his findings. And he will follow-up any findings himself until he gets answers.
  • He’s got connections, and everyone takes him seriously.

He’s taking this illness very seriously, and he’s approaching science in the way he knows best, which is in a world-class fashion! The more I hear about his research and plans, the more I become convinced that his research will throw up some answers. Perhaps more answers than we’ve ever had before in ME/CFS.

The crowdfunding effort in itself will further highlight ME/CFS and bring us well-needed attention. We’ve already been mentioned in media articles, and we hope there is more media stuff to come yet. With patients working on the project, and regularly interacting with Dr Lipkin’s team, this has also given Dr Lipkin a personal reason to invest in the illness. I think it’s given his team an added impetus to reach out to promote this crowdfunding project. Dr Lipkin’s team is working behind the scenes to attract funding, and to promote the project, as well as our team. So, whatever happens, this project is already a success and has already made a difference. I hope the fruits will show more as we head towards the end of the year.

*****
Would you like to share your thoughts and/or reasons for supporting Dr Lipkin’s ME/CFS research?  Please get in touch with us by email.  Thank you!

Posted in Crowdfunding, Dr Ian Lipkin, Global effort

Thanks to donors around the world

$68,046 (£40,628 or EUR50,237) has been raised as of today, from 438 donations which came from a total of 22 countries! This truly is a global effort – thank you to everyone who has made a donation, helped to spread the word about this crowdfunding campaign or helped in other ways.

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Posted in Crowdfunding, Dr Ian Lipkin, Total update